Sunday, July 10, 2005

7/10/05 - It has been 4 DAYS since Hannah's bone marrow transplant. Things have been going much as expected. Hannah has been sleeping on & off all day due to the morphine & gravol that she is getting. Hannah is on a morphine drip so it dispenses a small amout every hour to keep her pain under control. Hannah's sores that were in her throat have now travelled into her mouth. The doctors say they could go as far down as her esophagus and the top of her stomach. These are all NORMAL SIDE EFFECTS from the chemotherapy but have ELIMINATED Hannah's appetite. She remains on the TPN (nutritional supplement) but has not eaten any food since Tuesday. The combination of sores & extra mucous in her throat causes Hannnah to vomit +++, mostly blood & mucous. She is vomitting as much as 5 times a day & through the night. The doctors & nurses say that this is all VERY NORMAL for a child in Hannah's position BUT it is still very upsetting for Hannah. Hannah has been receiving blood transfusions (platelets) every other day. She spends all of her day in bed watching tv on & off between naps. She hasn't had much energy to do anything else. The medications keep her very DOPEY & DROWSY. This could go on anywhere from 1-3 weeks. Hannah's most recent blood work results for her White Blood Cells (WBC) is less than 0.1 which is GREAT. This means that the last dose of CHEMOTHERPAY was EFFECTIVE. Hannah did spike a FEVER today so she had to have blood drawn from both her lines & get a poke in her arm. She is already on 2 different antibiotics so until the cultures come back, NO CHANGES will be made. Hannah did have a POSITIVE & UPLIFTING part of her day today. Thanks to SICK KIDS hospital they have supplied Hannah with a VIDEO PHONE & one has been set up at Grandma's house where Hannah's sister Emily lives. Since Hannah is not allowed ANY visitors she is able to stay in contact with her sister (who will be 1 year old on Friday) and see her on the video phone whenever she wants. Hannah was able to use the phone this morning & had a GREAT time blowing kisses to Emily on the phone. Since her transplant, Hannah has been in a special ISOLATION room that only has the one bed & a chair. Parents are NOT ALLOWED to sleep while in the room. Karen & Stephen have been staying at a nearby hotel & rotating days & nights so that ONE of them is ALWAYS with Hannah. This will continue as long as Hannah is in this room. So far it has worked out well. Karen has been doing days at he hospital & sleeping at the hotel at nights and Steve has been doing nights at the hospital & sleeping at the hotel during the day. Hannah has been receiving the BEST OF CARE since being at Sick Kids. All the staff have been EXTREMELY ACCOMODATING & HELPFUL. Hannah is VERY LUCKY to have so many WONDERFUL people in her CORNER. Let's hope & pray that things start to get EASIER for her.

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