9/14/05 - Hannah has spent a FULL WEEK at home. She has been adjusting to being back at home & trying to fit back into her daily schedule. Hannah has been doing well overall. She has had some tough nights, which will be expected during the transition. Hannah has been enjoying spending her days & nights with Emily, Mommy & Daddy ALL TOGETHER! Hannah's appetite has been fluctuating, some days fair, others poor. Hannah does receive the tube feedings through the night for approximately 10 hours and an hour or two during the day. She attends the outpatient clinic every Monday, Wednesday & Friday for her IV medication & blood work and still receives visits from a nurse twice a day for more IV antibiotics. Hannah's progress is improving daily. She is gaining back her strength slowly. Being home has been the BEST MEDICINE she could ever have!!!