Tuesday, February 7, 2006
02/07/06 - Hannah went to Hospital today expecting to stay and receive her chemotherapy. After a long meeting between Karen, Stephen and the doctors they decided to hold off on the chemo and first do Hannah's surgery (removing her spleen). Hannah did receive a blood transfusion because her Platelets remained low but then was able to go back home again. Her surgery was scheduled for Feburary 13th at 12:30pm. She will return to hospital in a few days for blood work. NOTHING BETTER THAN A FEW MORE DAYS AT HOME!!!
Friday, February 3, 2006
02/03/06 - THANK YOU EVERYONE who came out to share in Hannah's special night. Due to Hannah's unforseen circumstances we threw her an EARLY 4TH BIRTHDAY PARTY at Chuck E Cheese. It was great to see so many people turn out to support Hannah. She had a BLAST!!! She was so ACTIVE, we couldn't keep up with her. Since Hannah spent her 3rd birthday in Hospital last year and things weren't looking so good right now. Chances of her being in hospital for her 4th birthday at the end of March are greater we decided to throw Hannah an EARLY BIRTHDAY PARTY WITH GREAT SUCCESS! Thanks again to all the family and friends who came out. Hannah had so much FUN and it was so GREAT to see her LAUGHING, SMILING AND ENJOYING herself like a child her age should!!!!! Hannah also had another UNIQUE and EXCITING OPPORTUNITY on Sunday. She got to visit Marineland and pet and feed the whales. Hannah had never been to Marineland before but has always loved WHALES! The Marineland staff were kind enough to allow Hannah the opportunity to visit eventhough it was closed for the season. It was another dream come true. Hannah has been so VERY FORTUNATE to have experienced the true KINDNESS and GENEROSITY of family, friends and even complete strangers who have gone above & beyond to make dreams come true for her and to make sure she enjoys LIFE to the FULLEST each day!!!
Wednesday, February 1, 2006
02/01/06 - PLEASE PRAY FOR HANNAH & HER FAMILY!!!!!WE GOT SOME VERY UPSETTING NEWS TODAY!!!! Hannah went in for her bloodwork today and things took a TURN FOR THE WORSE!! Hannah's preliminary work from her bone marrow aspiration show's a RELAPSE in Hannah's condition. Her blood counts have all been rising VERY SIMILAR to her first admission 1 year ago this week. Her platelets dropped down to 24 today and she required a blood transfusion. The doctors have told Karen & Stephen that they are 95% sure that her cancer has returned. All the blood results are testing positive for J.M.M.L. Hannah was released later this afternoon to go home and ENJOY the weekend. She will be admitted to Sick Kids Hospital on Monday or Tuesday to start chemotherapy. It has been an EXTREMELY EMOTIONAL, AND TRYING day for Karen & Stephen. It was exactly a year ago this week that Karen & Steve got the news that Hannah was diagnosed with J.M.M.L. and they are now RELIVING the cycle all over again. The doctors have said for Hannah to go do WHATEVER she wants to do this weekend and HAVE FUN. She has a AN0THER ROUGH ROAD AHEAD. They will start by giving her 3 rounds of chemotherapy (3-10 days each). They will also be removing her spleen. This will HOPEFULLY hold off some of Hannah's BAD CELLS until she is able to have another bone marrow transplant. Usually it is a minimum of 1 year wait before the body can handle another round of intense chemo for conditioning the body for a bone marrow transplant. The doctors feel that if Hannah can hold on until her 10 month mark which is May they may be able to do a transplant early. But it will require her to have FULL BOOY radiation before the transplant, which is also risky. In the next month Jacob will be tested as a possible donor. His cord blood was saved at birth and if he is a match it can be used for Hannah's transplant. Maybe Hannah's little brother will have the chance to be his big sister's HERO!!!! If Jacob is not a match they will have to go back to Hannah's previous donor. But since her body has already started to reject the new bone marrow and her BAD CELLS have over taken the GOOD ONES her chances of a successful transplant are minimal. Things are NOT LOOKING GOOD right now, but until Monday comes Hannah is going to have as MUCH FUN AS SHE POSSIBLY CAN!!! PLEASE KEEP HANNAH & HER FAMILY IN YOUR PRAYERS!!! SHE HAS BEATEN THIS BEFORE AND SHE CAN DO IT AGAIN!!!! WE LOVE YOU HANNAH!!! STAY STRONG!!!!YOU ARE A TRUE CHAMPION!!!
Wednesday, January 25, 2006
01/25/06 - GREAT NEWS!!! Hannah's bone marrow aspiration went VERY WELL today and Hannah is BACK HOME!!! Although a bit tired and in some discomfort (to be expected) Hannah made it through with NO COMPLICATIONS. Hannah's blood work today was even MORE ENCOURAGING. Her blood results seemed to be leveling out a bit more NORMAL. These results are making the doctors LEAN more to the conclusion that Hannah my have some type of VIRAL INFECTION, like mononeuclosis. Nothing is yet CONFIRMED. BUT things seem more ENCOURAGING. The bone marrow aspiration today will be the DEFINITIVE ANSWER but until those results come in the doctors are able to perform another test on Hannah's blood. This test will be able to tell us if Hannah STILL has more donor cells THAN her own. Because Hannah's donor was a male they can ACTUALLY determine which cells are male and which are female. ISN'T THAT AMAZING!!!!!These results should be received in about 2 days. Thank you all for your prayers. They ARE working!!!!!
Tuesday, January 24, 2006
01/24/06 - Some ENCOURAGING NEWS today. The blood test results were not as drastic as the doctors had anticipated. Although they were ELEVATED they were expecting the results to be much higher and more conclusive. Because the results were not definitive Hannah will be going in tomorrow for a Bone Marrow Aspirtation. This will determine whether she is having a relapse. If all goes well after the aspiration and she doesn't develop a fever she will come home later the same day. The DRAWBACK to this test is that the results WILL NOT be available for 2-6 weeks. As we continue to wait for the news let's keep Hannah in our prayers. The doctors did say that there are also certain VIRUSES that could be altering her blood levels in the same way. Let's HOPE AND PRAY that's all it is. Another GOOD NOTE, IF NEEDED there is still enough bone marrow left from Hannah's ANGEL donor to give her a TOP UP , which MAY BE all she needs. Because of the INTENSITY of the chemo Hannah received before her Bone Marrow Transplant in July it is not ABLE TO BE GIVEN for a full year following transplant. The TOP UP of donor bone marrow can be given without chemotherapy, IF REQUIRED. Let's all remain POSITIVE and PRAY for the BEST results possible!!! GOOD LUCK TOMMORROW HANNAH!!!!WE LOVE YOU!!!!
Monday, January 23, 2006
01/23/06 - HANNAH NEEDS YOUR PRAYERS!!!!!!!!!!!! Nothing has been confirmed yet, BUT Hannah's blood work on Thursday showed some irregularities. She went back for blood work today and the counts were VERY concerning. Tomorrow some more extensive blood tests will be run to CONFIRM or RULE OUT what the doctor's are suspecting. These abnormal counts have been similar to Hannah's 1st diagnosis of J.M.M.L. BUT the doctors HAVE NOT confirmed that she has had a relapse. They believe it may be one of three things: The medication she has been on, the recent infection of her lip, or the UNTHINKABLE!!! We do not want to speculate or think the worst before we have all the facts BUT Karen & Stephen need your prayers TONIGHT!!! It was one year ago next week that Hannah was diagnosed with J.M.M.L. and it is NOT something they want to relive again. Especially when things ARE going so well. So please PRAY for Hannah that her test goes well tomorrow and everything is FINE! BE STRONG!!! GOD IS WITH YOU ALL!!!!!!!
Monday, January 16, 2006
01/16/06 - Just had some EXCITING NEWS to share. On FEBRUARY 2ND Hannah's CENTRAL LINE wil be COMING OUT!!! All Hannah's blood work has been coming back AMAZING. She will have her FINAL blood draw from her central line on February 1st. WAY TO GO HANNAH. No news yet as to the date the G-TUBE will be coming out, but it won't be much longer after that. Hannah will be looking forward to her first SPLASH in the BATH in a LONG TIME. Just in time for the SUMMER SWIMMING.
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