Tuesday, March 21, 2006

03/21/06 - Still waiting on a bed in Bone Marrow Transplant. Things are REALLY busy over there. Hannah will move over as soon as a bed is available, hopefully in the next 10-14 days. If things take a turn for the worse before a bed becomes available Hannah will be able to begin her conditioning of chemotherapy and full body radiation (twice a day) in the oncology ward BUT will have to have the transplant in the Bone Marrow Transplant (BMT) ward in order to get the care that she needs. Let's pray a bed becomes available A.S.A.P. Hannah had a kidney function test done today where they inject radioactive dye into her veins and then through a handheld monitor measure the amount that is excreted through her kidneys. Because Hannah's OUTPUT has been much greater than her INPUT over the last few days the doctors feel she may have some kidney damage from the chemotherapy. To what extent they are still unsure. Hannah remains in bed not able to show much emotion. She is in the dark the majority of the day as her eyes are VERY SENSITIVE to the light, a side effect of the chemotherapy. She is still complaining of pain in her abdomen but the doctors are trying to wean her off the morphine. There is a CHANCE that Hannah will be able to have a day pass next Tuesday, March 28th for her 4th birthday. If she has not gone to BMT and she has no fever. A change of scenery may be just what she needs to CHEER HER UP. It gets VERY DEPRESSING for her having to stay in bed day after day, month after month not knowing what is coming next. Having to battle all the side effects from all the medicines and being CONSTANTLY interrupted with tests, vitals, bloodwork, etc. It is SO MUCH for her to handle. Although, Hannah is a TROOPER she sure knows the routines. When her nurse comes to do her vitals she holds out her arm for her blood pressure and opens her mouth for her temperature. She is SO STRONG and FIGHTS to get through each day. WAY TO GO HANNAH!! WE ARE ALL SO VERY PROUD OF YOU!

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