Monday, August 8, 2005

8/8/05 - Hannah had a ROUGH night and an OFF day today. She was complaining of a lot of pain due to a bad skin rash. Her skin breakdown is all the side effects from the chemotherapy, very RAW in places, especially her lips & bum. Hannah had a CAT scan today to determine if the sinus infection she had was improving. IF so, she will be taken off her antifungal medication. Hannah ate small amounts today but threw up a few times. She had her physiotherapy today for about 1/2 an hour. It consited of playing on the mat and doing some small excercises. She is also encouraged to try walking BUT requires A LOT of support. Her muscles have become very weak from being BEDRIDDEN for so long. Hannah has had a slightly high blood pressure, a side effect of the antirejection medication. She is taking meds to control that. She is also taking some medication to help with her loose bowel movements & vomitting. Hannah has not required ANY blood transfusions since last MONDAY, HOORAY!! Her hemoglobin and white blood cells remain stable BUT for some reason her poly's have dropped from 0.65 to 0.44 today. Her poly's had to remain above 0.5 for three days in order for her to go into the stepdown room, which they did yesterday. That allowed an extra bed to be brought into the room so mommy or daddy could sleep in the room with her. Unfortunately, if her poly's REMAIN LOW or DROP at all Hannah MAY have to return to her ISOLATION room. TOMORROW IS A VERY IMPORTANT DAY!! Hannah is having her SPECIAL BLOOD TEST which will determine the percentage of DONOR bone marrow. Anything above 90% donor & below 10% Hannah is GREAT (or close to that). Unfortunately, it takes 4WEEKS TO GET THE RESULTS. We can only pray that the numbers come out the way we expect. LET'S HOPE TOMORROW IS A BETTER DAY!

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