A TRIBUTE TO HANNAH!!!

04/23/06 - A TRIBUTE TO HANNAH!!! She fought all she could but it was just to much for her to bare. At 5:10pm today Hannah went to HEAVEN! With all her family present around her Hannah found true peace!!! She has earned her ANGEL WINGS and is the most beautiful and precious angel in heaven. Thank you to everyone who has supported her through this difficult year. Your prayers will never be forgotten. Hannah's strength and courage will live on FOREVER. She has inspired so many people and touched so many lives. WE ARE SO PROUD OF YOU AND HOW HARD YOU FOUGHT. KAREN AND STEPHEN, MAY GOD GIVE YOU STRENGTH TO GO ON. MAY THE SMILES OF EMILY AND JACOB AND THE MEMORIES OF HANNAH HELP YOU LIVE EACH DAY. YOU ARE AMAZING PARENTS, WE CAN SEE WHERE HANNAH GOT HER INNER STRENGTH. WE ARE SO PROUD OF YOU ALL!!! WE LOVE YOU!!! HANNAH, GOD WILL TAKE GOOD CARE OF YOU. YOU ARE HIS PRECIOUS CHILD!! YOU WILL NEVER BE FORGOTTEN. WE LOVE YOU HANNAH, FOREVER AND ALWAYS!!!

04/20/06 - Hannah still remains it the I.C.U. Yesterday she had a procedure done. They did a needle biopsy from her right lung and aspirated some of the fluid. There has been some decrease in the amount of swelling. The specimen results from the biopsy are not yet available. During the procedure Hannah had 4 units of plateles and the doctors actually had to stop her from breathing for approximately a minute to gather the sample. There was some bleeding during the procedure but the doctors were able to get it quickly under control. Hannah is receiving high doses of morphine as well as a medication that helps her to forget what is going on. Although she is not concious the doctors believe she can hear when spoken to and a have encouraged Karen and Stephen to continue to speak to her as they have before. Hannah is on TPN. She is not getting any feeds through the G-Tube because test results show that the lining of her stomache is to thin as a result of the chemo and could perfortate. Hannah's urine output has decreased again so today she has had a catheter reinserted so that her urine output can be more consisely measured. She has had no fever but is TOTALLY SEDATED. She is also receiving a muscle relaxant and a medication that paralysis her. This allows the machine to do ALL THE BREATHING FOR HER and will allow her lungs and heart some time to REST AND RECOVER. Doctors are concerned with Hannah's blood pressure it has been dropping VERY LOW at times. They are giving her 3 medications for her blood pressure. Hannah is receiving 65% oxygen. Between Friday and Sunday Hannah has had so many procedures done she earned 15 BRAVERY BEADS in just 3 days! WOW!! ON A POSITIVE NOTE Hannah has a full skin rash on 75% of her body which is caused from the GRAFT VS HOST. She is on a small amount of steriods just to control the itching, but doctors want this to occur so that the NEW BONE MARROW is fighting to TAKE OVER! Karen and Stephen have had a VERY TRYING AND EMOTIONAL WEEK!! They know that Hannah is RECEIVING AMAZING CARE FROM ALL THE DOCTOR'S AND THE NURSES IN THE I.C.U. but on the other had have felt a loss of control. Until now they were doing all of Hannah's personal care and now feel very HELPLESS. Although, after a very long time of not sleeping well, Karen and Stephen are able to leave the hospital in the night TOGETHER for about 6 hours and get SOME VERY NEEDED REST!!! Hannah's blood counts have also started to rise which is a positive sign. KEEP THE FAITH. THIS IS ANOTHER LITTLE HURDLE THAT HANNAH JUST NEEDS TO GET OVER!! Karen, Stephen and Hannah you are ALL AMAZING AND STRONG. KEEP PRAYING AS WE WILL WITH YOU!!! Karen and Stephen be reassured that you are AMAZING AND WONDERFUL PARENTS AND THE STRENGTH THAT YOU SHOW TO EACH OTHER AND HANNAH IS ADMIRED BY US ALL. YOU ARE DOING THE BEST THAT YOU POSSIBLY CAN AND HANNAH WILL THANK YOU FOR THAT WHEN SHE IS OLDER AND BE PROUD TO HAVE SUCH LOVING AND DEVOTED PARENTS!!!! STAY STRONG AND KEEP FIGHTING HANNAH!!!! WE LOVE YOU!!!

04/18/06 - Hannah took a turn for the WORSE overnight. Her heart rate is increased dramatically to over 200. Hannah has fluid building up around her lungs which is restricting them from expanding completely. Therefore her breathing has become shallow and her heart is overworking. Hannah was transfered to the I.C.U. at 1:00 this morning. She was intubated (a tube inserted down her throat to help her breath) and has been sedated to keep her asleep so there is no risk of her pulling out the breathing machine. This will allow Hannah`s lungs to get some rest and her heart to not have to work as hard. After a few hours on the breathing machine Hannah has already shown signs of improvement. Her heart rate has dropped down to the 150`s and her oxygen which was given at 100% is now only needed at 66%. Doctors are optomistic about Hannah`s progress and are hoping that she will only be in the I.C.U. and on the breathing machine for 24 - 72 hours if all continues to go well. Hang in there Hannah. Our prayers are with you!!!!!!

FINALLY SOME GOOD NEWS!!

04/17/06 - FINALLY SOME GOOD NEWS!! Hannah´s kidney function test done today showed POSITIVE RESULTS. Hannah has NO KIDNEY FAILURE and her kidneys are functioning normally! Things were touch and go for a while as Hannah`s oxygen level was dropping and as of yesterday was going to be admitted to the I.C.U. Hannah came through the procedure fine on thursday and did not have to go to the I.C.U. The results from the test showed the spots on Hannah`s lungs were due to BACTERIAL PNUEMONIA, not to the cancer (MORE GREAT NEWS) Although Hannah´s oxygen level is decreased and she has been put on 100% oxygen via mask she is still pulling her own. Hannah has a rash starting on her body that doctors feel MAY BE the early signs of GRAFT VS. HOST, another plus. Although it´s still too early to tell, when Hannah`s new bone marrow is fighting off the cancer cells this rash will occur. Let`s keep our fingers crossed! Otherwise Hannah has really PULLED HERSELF AROUND and is doing REMARKABLY WELL. She is able to eat and drink whatever she wants and has EVEN ASKED TO GO WALKING TODAY!! WAY TO GO HANNAH!!! YOU NEVER CEASE TO AMAZE US!!! KEEP IT UP SWEETIE! THINGS ARE GOING YOUR WAY!!

A LOT OF NEWS TODAY!

04/13/06 - A LOT OF NEWS TODAY! Over the past few days Hannah has received many tests. She has been gaining weight DRAMATICALLY, not because of an increase in appetite. Hannah has been retaining FLUID. Her urine output has decreased and she is having some swelling in her face. Over the past three days she has gained over 4lbs. It is belived that Hannah's kidneys are not functioning at there FULL CAPACITY. Her blood work shows increased levels to a point where the kidneys will begin to shut down. Hannah was scheduled for a kidney function test today but due to some complications the test was not accurate and the results were inconclusive. The test will be redone over the next few days. This will determine if Hannah is in KIDNEY FAILURE and to what extent. Until then a catheter was inserted tonight so her output could be more accurately measured. It was a very UNCOMFORTABLE PROCEDURE for Hannah and took a few attemps. Hannah received 2 more blood transfusions today, one of platelets and one of red blood cells. Hannah had a chest xray today which showed the lesions in her right lung had increased in size and there were some lesions starting on the bottom of her left lung as well. Unsure if these lesions are due to the radiation, infection or clusters of cancer cells the doctors will be preforming a procedure tomorrow to gather a culture of the lesion for testing. This procedure is a FLUSH of the lungs. Hannah will be taken tomorrow to the operating room and put under anethestic. She will be intubated (a small tube inserted down her throat to help her breath. Another small tube with a camera will then be inserted. Following this procedure Hannah will be ADMITTED to the INTENSIVE CARE UNIT. She will require closer monitoring as the breathing tube may need to remain in for 24-72hrs. Hannah is also hooked up to a heart monitor which is detecting some type of murmur or irregularity in her heartbeat. This also could be due to the fluid retention. Hannah has been JAUNDICE for the past few days and has met the criteria for having hepatic V.O.D. (veno-occlusive disease). This is an uncommon complication following high doses of chemotherapy and a bone marrow transplant. In patients with VOD, the blood vessels that carry blood through the liver become swollen and obstructed. This impairs the liver's ability to remove toxins, drugs and other waste products from the bloodstream. Pressure and fluids build up in the liver, causing swelling and tenderness of the liver. The kidneys may retain excess water and salt, causing fluid to build up in the body and swelling of the legs, arms and abdomen to occur. Once this disease occurs the chances for other systems to fail increase dramatically. Symptoms include increased levels of bilirubin (JAUNDICE), painful hepatomegaly (enlargement of the liver) and FLUID RETENTION. Hannah is receiving another medication to keep this condition under control. At the moment nothing is CONCLUSIVE until further test results are in. Let's stay positive and hope for the best. Hannah our prayers are with you. May you continue to find your strength in God's love as he is watching over you. Karen and Stephen, stay strong. Things may be very SCARY right now because there are so many UNKNOWNS. But remember Hannah is receiving the best care possible and she has AMAZING STRENGTH and DETERMINATION to get well. You both are also in our prayers today and ALWAYS!

04/10/06 - Hannah spiked a fever this morning (39.1) She has been given tylenol every 4 hours but the fever has not gone down yet. She was started on morphine this afternoon for the pain in her mouth and tummy. The urine culture taken on Friday when she had the blood in the urine tested positive for a strep virus so she was started on an antibiotic for that today. Hannah's G-Tube was draining a little today and when swabbed tested postive for infection. She also had a chest xray done today which showed some decreased air entry in her right lung and some brown spots. Doctors felt this may be a result of the radiation or it may be a fungal infection so they started her on an antibiotic for that. As of today Hannah is on 4 DIFFERENT IV ANTIBIOTICS. Her platelets taken this morning were only 7 so Hannah received a transfusion. About 8 hours later blood work was taken again and they had only gone up to 27 so she was given a second transfusion of platelets. The doctors want to keep her platelets above 30 because of the recent fever. Her hemoglobin also dropped this afternoon so Hannah was awaiting a transfusion of red blood cells. A very busy day for Hannah. Besides being on 4 antibiotics, morphine and given 3 blood transfusions Hannah found time to rest and watch tv. She doesn't yet have the energy to sit up and do crafts. That will come in time. Enjoy your sleep tonight Hannah. You deserve the REST!!!!

04/09/06 - Hannah is living proof of THE POWER OF PRAYER. Hannah continues to DEFY ALL ODDS. She has been doing EXTREMELY WELL so far. She made it through the chemo, radiation and the transplant with minor complaints. Thanks to all of you, your continued support & prayers with GODS HELP Hannah IS GOING TO BEAT THIS!!!!!! People all over the world who hear of Hannah's story are TOUCHED by her COURAGE and INSPIRED by her STRENGTH. Each one of those prayers are heared by God and have given Hannah the strength to fight each and every day. THANK YOU ALL!!!! Please continue your prayers as Hannah NEEDS THEM DAILY!! Hannah had a restful day yesterday. She spent most of the day laying watching TV. She is beginning to develop some mouth sores and thrush which are all side effects of the chemo BUT do affect her ability to eat. Hannah has had some JAUNDICE the past few days and did have some blood in her urine, which has cleared. All of these symptoms are side effects of the chemo and radiation. Otherwise, Hannah continues to have GOOD DAYS with love and support from Mommy and Daddy & video phone conversations with Emily and Jacob. KEEP UP THE GOOD WORK HANNAH!!! YOU ARE AMAZING!!!!!