9/14/05 - Hannah has spent a FULL WEEK at home. She has been adjusting to being back at home & trying to fit back into her daily schedule. Hannah has been doing well overall. She has had some tough nights, which will be expected during the transition. Hannah has been enjoying spending her days & nights with Emily, Mommy & Daddy ALL TOGETHER! Hannah's appetite has been fluctuating, some days fair, others poor. Hannah does receive the tube feedings through the night for approximately 10 hours and an hour or two during the day. She attends the outpatient clinic every Monday, Wednesday & Friday for her IV medication & blood work and still receives visits from a nurse twice a day for more IV antibiotics. Hannah's progress is improving daily. She is gaining back her strength slowly. Being home has been the BEST MEDICINE she could ever have!!!

9/7/05 - HANNAH IS HOME!!!!!! AFTER 7 LONG MONTHS HANNAH HAS COME HOME FOR GOOD!!!! Hannah was discharged yesterday from Sick Kids hospital. She has been REUNITED with her family: MOMMY, DADDY, & EMILY. Hannah has spent her first night at home in a LONG TIME. Emily has also returned home after living at Grandma's. The SISTERS have been INSEPERABLE! Hannah is EXTREMELY HAPPY to be home again. She is already picking up the role of PROTECTIVE BIG SISTER, always looking out for Emily. Hannah did develop an infection prior to leaving the hospital but is treated at home twice a day with IV antibiotics given by a nurse. Hannah receives a visit from the nurse at 9am & 9pm everyday to give her IV antibiotics, change all her dressings and monitor her feeds. Hannah is on the feeding pump for 10 hours at night (while she sleeps) and about 2 hours during the day (during quiet time). Hannah has been eating quite well since she has been home. The feeds will be adjusted as her appetite continues to improve. Hannah is attending the out patient clinic on Mondays, Wednesdays, and Fridays for a different IV antibiotic. This one cannot be given at home because it contains blood products. This is only for a few hours three times a week until she is cleared of the infection. Once cleared Hannah will only have to attend the clinic one day a week for blood work. Hannah is to start physiotherapy at home tomorrow. There will be a physiotherapist that comes to the house to do exercises with her to help her gain the strength back in her legs. YOU DID IT HANNAH!!! WELCOME HOME!!!! WE LOVE YOU!!!!